Over 500 Adult Hydrocephalus Patients Enrolled in Registry
We are happy to announce that over 500 patients are currently enrolled in the (AHCRN) core data project.
Entries by Jenna Koschnitzky, PhD
Medtronic Addresses FDA Recall for Strata™ II/Strata™ NSC and StrataMR™ valves
Discussion on social media around the FDA notification regarding the Strata™ II/Strata™ NSC and StrataMR™ valves has led to a number of questions from patients. There are two actions currently being taken by the FDA and Medtronic to address issues with each of these products respectively. Strata™ II/Strata™ NSC Valves Medtronic has proactively implemented a […]
Hydrocephalus and Disability Benefits
The Social Security Administration (SSA) provides support to disabled individuals through two separate disability benefit Programs: SSI and SSDI. Learn more.
Update on Obamacare
Congressional leaders are moving to repeal Obamacare per the campaign promise of President-elect Donald Trump. Here is an update on moves to date.
Like Father, Like Son: An NPH Journey
One man watched his father decline into a state of confusion until diagnosed with Normal Pressure Hydrocephalus. Then he found himself traveling the same road.
Senate Demonstrates Support for Continued Research for Veterans Living with Hydrocephalus
The hydrocephalus community claimed a big victory on Capitol Hill when we helped ensure Congress did not restrict medical research for veterans living with hydrocephalus.
Finding that Perfect Fit
It was truly amazing to be surrounded by people who either have hydrocephalus themselves that know exactly what it’s like to live the way I live,
The Power of Sharing
I look forward to going back to the hydrocephalus conference to reconnect with old friends, meet new friends and learn the latest and greatest information…
Us In Hydrocephalus: A Young Woman Finds Community
Robin, living with hydrocephalus, reflects on the power of uniting with a community to learn from each other and empower one another.
The Difficulties of Diagnosing Normal Pressure Hydrocephalus
Approximately 10% of those diagnosed with Alzheimer’s or dementia are living with Normal Pressure Hydrocephalus. Why is it so often mis- or undiagnosed?
In The News
Medtronic Addresses FDA Recall for Strata™ II/Strata™ NSC and StrataMR™ valvesMarch 17, 2017 - 2:23 pm
Update on ObamacareJanuary 17, 2017 - 2:52 pm
U.S. News & World Report Features Normal Pressure HydrocephalusFebruary 6, 2015 - 6:47 pm
FOX News Educates the Public on Normal Pressure HydrocephalusNovember 12, 2014 - 8:28 pm
AHCRN PI Dr. Norm Relkin Interviewed on Treatable DementiaSeptember 23, 2014 - 6:18 pm