AHCRN Blogs

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New Insights into Normal Pressure Hydrocephalus

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A recently published study attempts to shed light on the long term outcomes of untreated iNPH by examining mortality rates, risk of dementia, and symptom progression in individuals with ventricular enlargement.
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PT Tips for NPH Patients

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By the time Trish was diagnosed with NPH and had shunt surgery, she had lost her ability to walk unaided, so her neurosurgeon gave her a prescription for physical therapy.
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Opportunity to Contact Your Senators on Health Care Reform

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Are you concerned with provisions of the BCRA that could adversely affect your ability to maintain healthcare coverage? Learn how ​YOU can ​be sure your voice is heard.
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Healthcare Up for Vote in Senate

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Contact your Senator TODAY and urge them to oppose the AHCA before voting ends on Friday. If passed into law, the AHCA as it currently stands would be devastating for individuals with preexisting conditions, like hydrocephalus, and millions of Americans.
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Over 500 Adult Hydrocephalus Patients Enrolled in Registry

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We are happy to announce that over 500 patients are currently enrolled in the (AHCRN) core data project.
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Medtronic Addresses FDA Recall for Strata™ II/Strata™ NSC and StrataMR™ valves

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Discussion on social media around the FDA notification regarding…
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Hydrocephalus and Disability Benefits

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The Social Security Administration (SSA) provides support to disabled individuals through two separate disability benefit Programs: SSI and SSDI. Learn more.
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Update on Obamacare

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Congressional leaders are moving to repeal Obamacare per the campaign promise of President-elect Donald Trump. Here is an update on moves to date.
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Like Father, Like Son: An NPH Journey

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One man watched his father decline into a state of confusion until diagnosed with Normal Pressure Hydrocephalus. Then he found himself traveling the same road.
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Senate Demonstrates Support for Continued Research for Veterans Living with Hydrocephalus

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The hydrocephalus community claimed a big victory on Capitol Hill when we helped ensure Congress did not restrict medical research for veterans living with hydrocephalus.
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Finding that Perfect Fit

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It was truly amazing to be surrounded by people who either have hydrocephalus themselves that know exactly what it’s like to live the way I live,
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The Power of Sharing

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I look forward to going back to the hydrocephalus conference to reconnect with old friends, meet new friends and learn the latest and greatest information...
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Us In Hydrocephalus: A Young Woman Finds Community

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Robin, living with hydrocephalus, reflects on the power of uniting with a community to learn from each other and empower one another.
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The Difficulties of Diagnosing Normal Pressure Hydrocephalus

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Approximately 10% of those diagnosed with Alzheimer’s or dementia are living with Normal Pressure Hydrocephalus. Why is it so often mis- or undiagnosed?
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Next Steps for the Adult Hydrocephalus Clinical Research Network

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The Core Data Project of the Adult Hydrocephalus Clinical Research Network (AHCRN) has enrolled nearly 200 patients since in late 2014.
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Happening NOW! American Academy of Neurology Annual Meeting in Washington DC

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AHCRN Principal Investigators represent the patient voice at the American Academy of Neurology Annual Meeting in Washington DC.
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U.S. News & World Report Features Normal Pressure Hydrocephalus

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Is it dementia or Normal Pressure Hydrocephalus. U.S. News & World Report reports on the importance of proper diagnosis of this treatable dementia.
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FOX News Educates the Public on Normal Pressure Hydrocephalus

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With it's recent story on Normal Pressure Hydrocephalus, Fox News plays an important role in our continued efforts to educate the public and raise awareness about hydrocephalus and normal pressure hydrocephalus to a large national audience.
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Building Community: A case for adult hydrocephalus research

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The Adult Hydrocephalus Clinical Research Network officially launched in October, with a goal to deliver high quality, high impact hydrocephalus research.
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Bringing Normal Pressure Hydrocephalus Out of Obscurity

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In the 1960s, a treatable form of dementia was a controversial claim. One man questioned things that others were simply content to accept, and to bring it into the real world as a clinically diagnosable and, more importantly a treatable syndrome known as Normal Pressure Hydrocephalus. Who was Dr. Salomon Hakim?
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Welcome to the AHCRN blog

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As the Adult Hydrocephalus Clinical Research Network  or AHCRN…