AHCRN Blogs

The Use of Lumboperitoneal Shunts in iNPH Patients

In the United States, the standard treatment for idiopathic…

Rhaeos CEO Shares Details About Wearable FlowSense Device

Earlier this year, Rhaeos won MedTech Innovator's 2020 Global…

A Conversation with Aesculap About New M.blue Valve

On May 15th, Aesculap Inc., in partnership with MIETHKE, announced…

Individuals Diagnosed with Idiopathic Normal Pressure Hydrocephalus Show Improved Quality of Life after Shunting

A new study found that shunting improved quality of life for people living with Idiopathic Normal Pressure Hydrocephalus (iNPH).

COVID-19 Guidance for People Living with Hydrocephalus

HA Medical Advisory Board Recommendations Regarding COVID-19…

Medical Experts and Patients Educate New Jersey Families About Brain Disorder That Affects Over 1 Million Americans

Dementia, gait disturbance, and incontinence. Typically, when older adults have these symptoms, they're told they have diseases like Alzheimer’s, Parkinson’s or a host of other illnesses, when in many cases they are suffering from a treatable condition called Normal Pressure Hydrocephalus (NPH). Join the Hydrocephalus Association at its first Hydrocephalus Education Day in Neptune, NJ on Nov. 9th, where medical experts and patients will discuss NPH symptoms, and share information about other forms of hydrocephalus.

New Clinical Trial Aims to Determine Effectiveness of Shunting for iNPH Patients

Patients diagnosed with idiopathic Normal Pressure Hydrocephalus (iNPH) are typically treated by having a shunt placed surgically. A new clinical trial will determine whether or not shunts are an effective form of treatment for iNPH patients.

Hydrocephalus Society – Call for Abstracts

  Call for Abstracts! The final date for the…

The Subjective Experience of Patients Undergoing Shunt Surgery for Idiopathic NPH

A study from Yale School of Medicine looked at the personal experiences of people diagnosed with idiopathic Normal Pressure Hydrocephalus (iNPH).

Hydrocephalus Society: Submit your abstracts

Call for Abstracts We are delighted to announce the Call…

U.S Sled Hock Team Blanks Japan, 10-0, in Paralympic Opener

U.S. Sled Hockey team defeats Japan in Paralympic Opener! Adam Page, Olympic champion living with #hydrocephalus and #spinabifida, is once again a force on the ice. Adam spoke at our 2014 National Conference on Hydrocephalus. http://uspara.us/2DlfNBk

New Insights into Normal Pressure Hydrocephalus

A recently published study attempts to shed light on the long term outcomes of untreated iNPH by examining mortality rates, risk of dementia, and symptom progression in individuals with ventricular enlargement.

PT Tips for NPH Patients

By the time Trish was diagnosed with NPH and had shunt surgery, she had lost her ability to walk unaided, so her neurosurgeon gave her a prescription for physical therapy.

Opportunity to Contact Your Senators on Health Care Reform

Are you concerned with provisions of the BCRA that could adversely affect your ability to maintain healthcare coverage? Learn how ​YOU can ​be sure your voice is heard.

Healthcare Up for Vote in Senate

Contact your Senator TODAY and urge them to oppose the AHCA before voting ends on Friday. If passed into law, the AHCA as it currently stands would be devastating for individuals with preexisting conditions, like hydrocephalus, and millions of Americans.

Over 500 Adult Hydrocephalus Patients Enrolled in Registry

We are happy to announce that over 500 patients are currently enrolled in the (AHCRN) core data project.

Medtronic Addresses FDA Recall for Strata™ II/Strata™ NSC and StrataMR™ valves

Discussion on social media around the FDA notification regarding…

Hydrocephalus and Disability Benefits

The Social Security Administration (SSA) provides support to disabled individuals through two separate disability benefit Programs: SSI and SSDI. Learn more.

Update on Obamacare

Congressional leaders are moving to repeal Obamacare per the campaign promise of President-elect Donald Trump. Here is an update on moves to date.

Like Father, Like Son: An NPH Journey

One man watched his father decline into a state of confusion until diagnosed with Normal Pressure Hydrocephalus. Then he found himself traveling the same road.

Senate Demonstrates Support for Continued Research for Veterans Living with Hydrocephalus

The hydrocephalus community claimed a big victory on Capitol Hill when we helped ensure Congress did not restrict medical research for veterans living with hydrocephalus.

Finding that Perfect Fit

It was truly amazing to be surrounded by people who either have hydrocephalus themselves that know exactly what it’s like to live the way I live,

The Power of Sharing

I look forward to going back to the hydrocephalus conference to reconnect with old friends, meet new friends and learn the latest and greatest information...

Us In Hydrocephalus: A Young Woman Finds Community

Robin, living with hydrocephalus, reflects on the power of uniting with a community to learn from each other and empower one another.

The Difficulties of Diagnosing Normal Pressure Hydrocephalus

Approximately 10% of those diagnosed with Alzheimer’s or dementia are living with Normal Pressure Hydrocephalus. Why is it so often mis- or undiagnosed?

Next Steps for the Adult Hydrocephalus Clinical Research Network

The Core Data Project of the Adult Hydrocephalus Clinical Research Network (AHCRN) has enrolled nearly 200 patients since in late 2014.

Happening NOW! American Academy of Neurology Annual Meeting in Washington DC

AHCRN Principal Investigators represent the patient voice at the American Academy of Neurology Annual Meeting in Washington DC.

U.S. News & World Report Features Normal Pressure Hydrocephalus

Is it dementia or Normal Pressure Hydrocephalus. U.S. News & World Report reports on the importance of proper diagnosis of this treatable dementia.

FOX News Educates the Public on Normal Pressure Hydrocephalus

With it's recent story on Normal Pressure Hydrocephalus, Fox News plays an important role in our continued efforts to educate the public and raise awareness about hydrocephalus and normal pressure hydrocephalus to a large national audience.

Building Community: A case for adult hydrocephalus research

The Adult Hydrocephalus Clinical Research Network officially launched in October, with a goal to deliver high quality, high impact hydrocephalus research.
Norman R. Relkin, M.D., Ph.D.

AHCRN PI Dr. Norm Relkin Interviewed on Treatable Dementia

Dr. Norman Relkin of Weill Cornell Medical College describes…

Bringing Normal Pressure Hydrocephalus Out of Obscurity

In the 1960s, a treatable form of dementia was a controversial claim. One man questioned things that others were simply content to accept, and to bring it into the real world as a clinically diagnosable and, more importantly a treatable syndrome known as Normal Pressure Hydrocephalus. Who was Dr. Salomon Hakim?

Welcome to the AHCRN blog

As the Adult Hydrocephalus Clinical Research Network  or AHCRN…