The AHCRN is currently enrolling patients
Registry Eligibility
- All Transitioning Hydrocephalus Patients
- All Unrecognized Congenital Hydrocephalus Patients
- New Acquired Hydrocephalus Patients
- New Normal Pressure Hydrocephalus Patients
The AHCRN is composed of 17 clinical sites in the US, Canada, and Europe:
Primary Investigator: Mark Hamilton, MDCM, FRCSC, FAANS and Sarah Edwards, MD, FRCSC
Clinic: Hydrocephalus Clinic at Foothills Medical Centre
Website: www.albertahealthservices.ca/findhealth/Service.aspx?id=1071913&serviceAtFacilityID=1112253
Location: Calgary, AB, Canada
Phone: 403-944-1626
Principal Investigators: Sean Nagel, MD and James Liao, MD, PhD
Clinic: Cleveland Clinic
Website: my.clevelandclinic.org/services/hydrocephalus-treatment
Location: Cleveland, OH
Phone: 216-636-5860
Principal Investigator: Alexa Bramall, MD, PhD
Clinic: Duke University Hospital
Website: https://neurosurgery.duke.edu/patient-care/locations
Location: Durham, NC
Phone: 919-684-8111
Principal Investigators: Abhay Moghekar, MBBS and Mark Luciano, MD, PhD
Clinic: Johns Hopkins Hydrocephalus and Cerebral Fluid Center
Website: www.hopkinsmedicine.org/neurology-neurosurgery/specialty-areas/cerebral-fluid
Location: Baltimore, MD
Phone: 410-955-5000
Principal Investigators: Benjamin Elder, MD, PhD
Clinic: Mayo Clinic
Website: https://www.mayoclinic.org/diseases-conditions/hydrocephalus/care-at-mayo-clinic/mac-20373615
Location: Rochester, MN
Phone: 507-538-3270
Principal Investigators: Ahmed Toma, MD
Clinic: National Hospital for Neurology & Neurosurgery
Website: https://www.uclh.nhs.uk/our-services/our-hospitals/national-hospital-neurology-and-neurosurgery
Location: Queen Square, London, England
Phone: 020 3456 7890
Principal Investigator: Guy McKhann II, MD
Clinic: The Adult Hydrocephalus Center at Columbia
Location: New York, NY
Phone: 212-305-7950
Principal Investigators: James Golomb, MD and David Harter, MD
Clinic: NYU Langone Neurosurgery Adult Hydrocephalus Program
Website: nyulangone.org/care-services/brain-spine-care
Location: New York, NY
Phone: 212-263-5709
Principal Investigator: Richard Edwards, MD, FRCS
Clinic: North Bristol NHS Trust
Location: Bristol, England
Phone: 0117 414 6613
Principal Investigator: Jefferson Chen, MD, PhD
Clinic: UCI Health
Website: https://www.ucihealth.org/medical-services/programs/neurosurgery
Location: Irvine, CA
Phone: 714-456-3656
Principal Investigator: Naomi Abel, MD
Clinic: USF Health
Website: https://health.usf.edu/care/neurosurgery/services-specialties/hydrocephalus
Location: Tampa, FL
Phone: 813-821-8034
Principal Investigator: Alfonso Fasano, MD, PhD
Clinic: Krembil Brain Institute
Website: https://www.uhn.ca/Krembil/Clinics/Memory_Clinic
Location: Toronto, ON, Canada
Phone: 416-603-5232
Primary Investigator: Ramesh Grandhi, MD
Clinic: Clinical Neurosciences Center
Website: https://healthcare.utah.edu/locations/neurosciences
Location: Salt Lake City, UT
Phone: 801-585-7575
Principal Investigator: Michael Williams, MD, FAAN
Clinic: Neurological Surgery Clinic at UW Medical Center
Website: www.uwmedicine.org/locations/neurological-surgery-uwmc
Location: Seattle, WA
Phone: 206-520-5000
Primary Investigator: Thomas Zwimpfer, MD, PhD, FRCSC
Clinic: Hydrocephalus Clinic at Vancouver General Hospital
Website: www.vch.ca/en/service/hydrocephalus-clinic
Location: Vancouver, BC, Canada
Phone: 604-875-4111 ext. 67378
Primary Investigator: David Limbrick, MD, PhD, FAANS, FAAP
Clinic: VCU Health
Location: Richmond, VA
Phone: 804-827-4080
Primary Investigator: Charles Matouk, MD
Clinic: Yale Medicine – Neurosurgery Normal Pressure Hydrocephalus Program
Website: https://www.yalemedicine.org/departments/normal-pressure-hydrocephalus-program
Location: New Haven, CT
Phone: 877-925-3637