Posts

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New Insights into Normal Pressure Hydrocephalus

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A recently published study attempts to shed light on the long term outcomes of untreated iNPH by examining mortality rates, risk of dementia, and symptom progression in individuals with ventricular enlargement.
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Hydrocephalus and Disability Benefits

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The Social Security Administration (SSA) provides support to disabled individuals through two separate disability benefit Programs: SSI and SSDI. Learn more.
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Update on Obamacare

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Congressional leaders are moving to repeal Obamacare per the campaign promise of President-elect Donald Trump. Here is an update on moves to date.
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Like Father, Like Son: An NPH Journey

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One man watched his father decline into a state of confusion until diagnosed with Normal Pressure Hydrocephalus. Then he found himself traveling the same road.
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Senate Demonstrates Support for Continued Research for Veterans Living with Hydrocephalus

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The hydrocephalus community claimed a big victory on Capitol Hill when we helped ensure Congress did not restrict medical research for veterans living with hydrocephalus.
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Finding that Perfect Fit

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It was truly amazing to be surrounded by people who either have hydrocephalus themselves that know exactly what it’s like to live the way I live,
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The Power of Sharing

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I look forward to going back to the hydrocephalus conference to reconnect with old friends, meet new friends and learn the latest and greatest information...
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Us In Hydrocephalus: A Young Woman Finds Community

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Robin, living with hydrocephalus, reflects on the power of uniting with a community to learn from each other and empower one another.
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The Difficulties of Diagnosing Normal Pressure Hydrocephalus

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Approximately 10% of those diagnosed with Alzheimer’s or dementia are living with Normal Pressure Hydrocephalus. Why is it so often mis- or undiagnosed?
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Next Steps for the Adult Hydrocephalus Clinical Research Network

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The Core Data Project of the Adult Hydrocephalus Clinical Research Network (AHCRN) has enrolled nearly 200 patients since in late 2014.